Nancy Schwartz on Raising a Son with Trisomy 21 / Down Syndrome

Nancy Schwartz:”Up, Not Down Syndrome: Uplifting Lessons Learned from Raising a Son with Trisomy 21″

Presented February 11, 2021
for Phoenixville Public Library

Up, Not Down Syndrome is a love letter and a map. Experience how it feels to think your life is over after having an unlovable baby. At first the loss seems impossible to overcome. Alex becomes Nancy’s greatest teacher. Love is stronger than fear. Everyone has gifts. The book consists of three parts: the story, the lessons Alex taught Nancy, and Alex’s perspective. Up, Not Down Syndrome is a promise to stay positive, no matter what: up, not down. Nancy’s journey gets to the core of what it is to be human.

Nancy M. Schwartz has taught in Pennsylvania for 26 years. She holds certificates as an ESL program specialist, reading specialist, and elementary and early education teacher. Nancy’s undergraduate degree came from Temple University, and she attended graduate school at Saint Joseph’s University. Nancy spent several summers studying at the Teachers College Columbia University, Reading and Writing Project. She enjoys ballet, reading, writing, art, fashion, animals, music, and, most of all, motherhood. This is her first book. More info at https://upnotdownbook.com​.

Don’t Rush Me!

SKU 978-1-61599-264-5
$15.95
In stock
1
Product Details

A storybook about special needs siblings to engage the whole family!

My daughter, Jordhan, has the unique position of not only being a middle child, but a middle child among siblings with special needs. This story touches on the important contributions Jordhan makes to our family, especially on the days when she doesn’t think so. We need more stories for siblings of special needs children. This is my gift to each of them to show how much we appreciate their very important role in the family.
In the book, I have outlined activities that siblings can do on their own, or with parents and/or siblings. To make the most of the message given in the book, as well as from the activities provided, it is my hope that siblings and family members will:

  • Have a tool that will help make siblings of special needs children more visible in the family unit;
  • Give a voice to siblings that represents how real their feelings and concerns are, even when they aren’t always able verbalize those things;
  • Help to provide a greater level of understanding by strengthening communication, patience and respect among family members;
  • Show that there is so much more than the labels these families are given and offer some insight into how they can learn to advocate for their children; and
  • Remember that each of us brings something beautiful and unique with us into the world that we can learn from, and teach others about. And that’s so powerful.
"When you are a sibling of a child with special needs, especially one whose life can be dictated by sensory issues from their environment, you often learn to "live in the moment." In this validating family book, Mia's feelings are explored. Often siblings have to sacrifice or alter their day because of the needs of their brother or sister —whether it be leaving a fun activity to go to therapy or dealing with a meltdown that affects the whole family. Don’t Rush Me explores these situations in a way that teaches siblings that their way-too-familiar rollercoaster of feelings is normal and that they are not alone in them."
--Diane M. Renna, author of Meghan's World: The Story of One Girl's Triumph Over SPD



"Using colorful illustrations to deliver her message and spot-on dialogue, any parent or child can identify with the situations Chynna Laird presents. Written from the perspective of a typical child, one understands the patience and assistance she willingly offers to her siblings with sensory processing difficulties. This is a sweet, lovely book that cheers family relationships and accepts individual differences in others."
--Laurie Zelinger, PhD, ABPP, RPT-S, Board Certified Psychologist, author of Please Explain "Terrorism" to Me

From Loving Healing Press www.LHPress.com

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